Problematic aspects of faecal incontinence according to the experience of adults with spina bifida
Vigdis Johnsen, Eli Skattebu, Astri Aamot-Andersen, Mikael Thyberg
Objective: To describe problematic aspects of faecal incontinence according to the experience of adults with spina bifida.
Design: Qualitative interview study.
Subjects: Eleven adults with spina bifida and bowel problems.
Method: Semi-structured open-ended interviews and qualitative analysis.
Results: Problematic aspects were related to participation in terms of time consumption, communication, social isolation, love and sexuality, and accessibility. Also, to a sense of helplessness in terms of panic and worry, to a sense of shame in terms of impurity, social acceptance and self-image, and to bowel function in terms of decisions about colostomy, voluntary constipation, and changing patterns.
Conclusion: The results reveal aspects relevant to supporting clinical practice and suggesting issues for questionnaire studies.
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