Susanne Guidetti, Charlotte Ytterberg, Lisa Ekstam, Ulla Johansson, Gunilla Eriksson
Division of Occupational Therapy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Box 23 200, SE-141 83 Huddinge, Sweden. E-mail: susanne.guidetti@ki.se
DOI: 10.2340/16501977-1865

Objective: To examine data collected using the Stroke Impact Scale 3. 0 (SIS) at 3 and 12 months post-stroke, and to explore any clinically meaningful changes in everyday life in relation to age, gender and stroke severity.
Design: Prospective longitudinal study.
Methods: A total of 204 persons were assessed using the SIS at 3 and 12 months after onset of stroke. Changes in domain scores were calculated over time and in relation to age, gender and stroke severity.
Results: The Strength, Hand Function and Participation domains had the highest perceived impact at 3 and 12 months, indicating problems in everyday life. Stroke recovery was perceived to be significantly higher at 12 than at 3 months irrespective of stroke severity, age or gender. The impact on the Strength and Emotion domains was significantly lower at 12 months than at 3 months. Most clinically meaningful changes, both positive and negative (± 15 points), were seen in the Participation domain and in Stroke recovery. Few changes were associated with age, gender or stroke severity.
Conclusion: Both positive and negative clinically meaningful changes related to impact of stroke were found between 3 and 12 months post-stroke. Therefore it is important to pay close attention to patients’ perceptions of their everyday life situation during rehabilitation and at discharge.