Servando E. Marron, Manuel Gomez-Barrera, Lucía Tomas Aragones, Ana Goni-Navarro, Eva Vilarrasa-Rull, Rosa María Diaz-Diaz, Francisco Javier Garcia-Latasa de Aranibar, Ricardo Campos-Rodenas, Victoria Fuentelsaz del Barrio, Yolanda Gilaberte-Calzada, Tamara Gracia-Cazaña, Anna María Morales-Callaghan, Sandra Ros-Abarca, María Blanca Madrid-Alvarez, Lluís Puig
DOI: 10.2340/00015555-3905

To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectiv­es of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi­centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceiv­ed by patients.

Hidradenitis suppurativa is a chronic inflammatory skin disease with negative physical and psychosocial effects. The importance of measuring quality of life in patients with hidradenitis suppurativa has been described in numerous studies, as this skin disease has a negative impact on people’s lives. Thus, it is important to develop and use disease-specific questionnaires to better understand the impact of this disease on patients. The Hidradenitis Suppurativa Quality of Life-24 is a disease-specific instrument for measuring quality of life in adult patients with hidradenitis suppurativa. The instrument was developed and validated in Spain.

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